"You're
not alone..."
chronic
diseases
disease,
Home dialysis book
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For All Caregivers, of All Chronic Diseases !
Massachusetts General Hospital
Beth Isreal Hospital
Attleboro Visiting Nurse Association
Family Services of Fall River, Inc.
South Shore Hospital
Massachusetts Politics
Attleboro Politics
Caregivers
Home Hemodialysis
Peritoneal Dialysis
Sturdy Memorial Hospital
Morton Hospital, Taunton MA
"I truly enjoyed
the frankness in which you wrote it. . . . We do lose our source of income when care giving is a full time job and we do sleep
in cars and drive miles for help. . . . I could really relate to the emotions expressed in the book. . . . I thought it also did well at pointing on the problems patients have with ESRD. . . . (To the) government
and the health care profession; it would be nice if they could see what “life” was really like for caregivers
and ESRD patients."
Martha Washburn, caregiver on the cutting edge of nocturnal dialysis.
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For All Caregivers, of All Chronic Diseases ! For Anyone . . .
"It is truly rare that any scientific
discovery has a major impact on an entire disease population and that the entire face of that disease is changed by that discovery."- Dr. Emil P. Paganini on the advent of Epogen
“She never held back-if she
had something on her mind-you’d hear it-LOUD AND CLEAR!”
Kidney disease is the
ninth leading cause of death in the United States. Approximately 19 million U.S. adults have chronic kidney disease, and an
estimated 80,000 persons have chronic kidney failure diagnosed annually. Chronic kidney disease is under-diagnosed and under-treated,
and the risk of progression to ESRD is very high.
“Oh John somethin’s wrong-ya
need to get here-fast. I mean fast! I’m in a lot of pain…”
It was Lois.
“Life is a journey
that begins with birth and ends with death. In between the two we travel on many roads and take some nasty detours. But make
no mistake about it, life is movement forward. To stand still or to turn back is death, no matter how we disguise it.”
-Robert Kjulborg
Wissler takes the reader on a tortuous
journey of him as caregiver, and his significant other, Lois, as care receiver, with all the bumps and laughs in the road along the way. No less important
is the bureaucratic wrangling as the author relentlessly seeks the appropriate level of medical care for a woman in increasingly
dire straits.
Here is a truly compelling story about two
people that will bring tears to your eyes, laughter from your belly, and sympathy from your heart. Poignant Moments .
. . walks you through the trials and tribulations of a couple who faced life head-on through the best of times as well
as the worst. It is happiness combined with tragedy. John and Lois make the most of a situation even when confronted
with all that life chooses to throw at them. We cannot hear about or read this story enough times because it demonstrates
the ability to fight against all odds. This story tells all of us that there is always hope and that there is no reason
to ever give up without a fight. We all need to make the most out of what life hands us.
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